thanks guys- he has been listed now we are waiting
we are sure hoping he gets the call for an available matching organ !
when the call comes that a matching organ is available, one of us will go with him to UPMC and when they determine that they are going to go ahead and implant- take him into surgery, my sis will get on a plane in iowa and fly into pitts. we plan for he and my sis to stay with my brother and family in pittsburgh when he is first released after the surgery- he will have several appointments a week. then after about a month, they will move back in with us since he will have 1 appointment a week till he is released to return to iowa.
now he cares for himself and drives his car etc. but i still feel bad if we go somewhere on our own without him, but we need privacy too.